<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-7257250658073394787</id><updated>2011-11-27T18:11:43.493-08:00</updated><category term='Fight for Lyme Disease Education'/><category term='chronic lyme'/><category term='Lyme Kills'/><category term='lower back pain'/><category term='barbesia'/><category term='fighting lyme disease'/><category term='lyme symptoms disappearing'/><category term='slow'/><category term='tired'/><category term='lyme sickness'/><category term='what is wrong with me?'/><category term='massachusetts lyme disease'/><category term='massachusetts lyme care'/><category term='Change Legislation for Lyme disease'/><category term='work issues'/><category term='lyme disease'/><category term='lyme'/><category term='aches and pains'/><category term='memory problems'/><category term='feeling good'/><category term='sick'/><category term='mass lyme'/><category term='happiness'/><category term='what is lyme'/><category term='fatigue'/><category term='tick related diseases'/><category term='ticks'/><category term='diagnosis'/><category term='lyme symptoms'/><category term='feeling better'/><category term='stupid'/><category term='Under Our Skin'/><category term='short term memroy problems'/><title type='text'>Diagnosed with Lyme Disease</title><subtitle type='html'></subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>24</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-2114440191063500848</id><published>2011-10-31T16:37:00.001-07:00</published><updated>2011-10-31T16:44:13.584-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='lyme sickness'/><category scheme='http://www.blogger.com/atom/ns#' term='fighting lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='ticks'/><category scheme='http://www.blogger.com/atom/ns#' term='Change Legislation for Lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='massachusetts lyme care'/><title type='text'>Still Fighting the Fight</title><content type='html'>Still fighting the fight, :( &lt;br /&gt;Sad but true, when you think its over, its not. But I am still fighting the fight. &lt;br /&gt;Back on medications 2 weeks on and then 2 weeks off. I delayed getting back on them&lt;br /&gt;due to a "turned 50" procedure that was recommended. So after that was done I got back on. 2 weeks I'm thinking great I don't feel any difference. Just when the 2 weeks were almost over I started with hip, knee and ankle pain along with one foot aching. Two days later (I had to unload 52 plant boxes from an 18 wheeler and by the time I was finished with 3 loads hauling from one place to the other I had to lay down. Hurting from head to toe I didn't move a muscle for about an hour on the couch, then I had to get up and unload each box and put thousands of plants away. I was totally exhausted and hurting for 3 days after that. I ended the meds on the 3rd day after that to begin my 2 weeks off. I did notice the pain diminish. So I am thinking that was all Herxing. We'll see when I begin my 2 weeks on again.&lt;br /&gt;NOT LOOKING FORWARD TO THAT.&lt;br /&gt;One thing I did do in October was another art/craft show for 3 days. When I do those I pass out free information on Lyme disease and most people want to talk. Its nice to just get educational material out there especially in MA.&lt;br /&gt;I still travel (along with my husband) to Bridgeport, CT. to see our lyme specialist. He is amazing!!! We have helped so many others and we met one of the families on our last trip there. We (especially my husband Jeff) got hugs and kisses and praise from the mother and from the young man. He is on his way to better days. I love that part of it. HELPING OTHERS!! My husband does more of that for people he meets. Just to see happiness and relief that they have found some actual help. &lt;br /&gt;Well onward and upward is all I can say now. &lt;br /&gt;Fight the fight and never give up! &lt;br /&gt;PEACE&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-2114440191063500848?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/2114440191063500848/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2011/10/still-fighting-fight.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2114440191063500848'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2114440191063500848'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2011/10/still-fighting-fight.html' title='Still Fighting the Fight'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-2883424991901412860</id><published>2011-03-07T17:09:00.000-08:00</published><updated>2011-03-07T17:09:24.317-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fight for Lyme Disease Education'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='Change Legislation for Lyme disease'/><title type='text'>Bad Girl</title><content type='html'>Well, since Lyme has drained most of our money and most Dr's in Massachusetts don't know much about it, we have missed appt's with our Lyme Specialist. Its hard when insurance does not pay for out of the "system" Dr's. At 250 dollars each, my husband and I, thats a lot of money to dish out. After being off the meds for two months, things have come back. &lt;br /&gt;At times incredible joint pain in my hands, elbows, back and knees. Stabbing pains in legs and arms. I should be glad thats all thats back but we need to go back and get another round of meds. So we will be calling the Dr. soon. &lt;br /&gt;I wish we could find a Dr in the "system that is as educated as our Lyme Literate Dr. But since MA recently passed a law for Dr's to treat it longer than they were allowed maybe someone is out there that the insurance will pay for. Thing is, how do you find them and how long can you wait. Switching Dr's is not fun either.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-2883424991901412860?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/2883424991901412860/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2011/03/bad-girl.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2883424991901412860'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2883424991901412860'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2011/03/bad-girl.html' title='Bad Girl'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-3643214303762525112</id><published>2010-10-21T16:59:00.000-07:00</published><updated>2010-10-21T16:59:30.719-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='barbesia'/><category scheme='http://www.blogger.com/atom/ns#' term='ticks'/><category scheme='http://www.blogger.com/atom/ns#' term='Change Legislation for Lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='massachusetts lyme care'/><title type='text'>Its been awhile!</title><content type='html'>Yeah, so what.....its been awhile. I know. I am trying to ignore the Lyme thing. Its bee too long, met too many other people who have it or think they do or are seriously ill from it. So sad. Still frustrating!&lt;br /&gt;&lt;br /&gt;I went for another Dr visit this summer. He thought I was almost done with it. He is a bit late getting back with test results though. Anywho, the tests show I still have Barbesia and 4 Lyme bands. I didn't call him yet to see whats next. One part of me says forget about it and the other part knows better.&lt;br /&gt;&lt;br /&gt;Lyme sucks, no if's and's or but's about that.&lt;br /&gt;&lt;br /&gt;I was on the 2 weeks on meds and then 2 weeks off but now I think that will change. Can't wait for this to be over, but then again I am afraid to get bit. Actually had a tick on me yesterday, in my ear.&lt;br /&gt;Never felt it but I think I got it before it attached. &lt;br /&gt;&lt;br /&gt;I hate them. I think we can live in the world without ticks......&lt;br /&gt;&lt;br /&gt;till next time&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-3643214303762525112?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/3643214303762525112/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/10/its-been-awhile.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3643214303762525112'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3643214303762525112'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/10/its-been-awhile.html' title='Its been awhile!'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-3895176527298748754</id><published>2010-04-07T16:55:00.000-07:00</published><updated>2010-04-07T16:55:20.718-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fight for Lyme Disease Education'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='Change Legislation for Lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='massachusetts lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lower back pain'/><title type='text'>so far so good</title><content type='html'>I am feeling much better, lots of energy, head really clear, easy to remember things at work, body aches very little. I still have sutle symptoms, off the doxy, wishing I could take it thou, had lots of Herx with it but that means it was doing a good job killing them off. &lt;br /&gt;Tick season is beginning and I find myself scared to have them on me again. I want to find some all natural product ( maybe make my own) to put on, maybe some essential oils in suntan lotion, I will have to experiment to see what helps. Pets need to be treated also. &lt;br /&gt;So far so good. We will see next month how its going.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-3895176527298748754?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/3895176527298748754/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/04/so-far-so-good.html#comment-form' title='31 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3895176527298748754'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3895176527298748754'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/04/so-far-so-good.html' title='so far so good'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>31</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-5641318023172276054</id><published>2010-03-11T13:34:00.000-08:00</published><updated>2010-03-11T13:34:46.634-08:00</updated><title type='text'>sad</title><content type='html'>Well, since I started on the new medications I have had some problems.&lt;br /&gt;What seems like a bladder infection has come up negative, my body tries to get used to the new drugs, diarrhea, nausea, muscle pain and other things have come about. Not fun. I can't tell if its the Lyme dying off or if the new drugs are causing it. I am waiting to speak with my specialist again. &lt;br /&gt;Its hard when your body is adjusting to new medications but it certainly isn't fun at all. Makes me just want to quit everything and walk away. I know I can not. I know there are people out there whose suffering does not compare but sometimes I can't help but be bottled up in my world. &lt;br /&gt;When will this all end? I want my life back, I want to do the things I used to do without the pain and fatigue and the limitations.&lt;br /&gt;I feel like I haven't been a good parent or wife. I feel very alone sometimes even though people surround me. I know tomorrow will be better, it always is. I just feel a bit sad today.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-5641318023172276054?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/5641318023172276054/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/03/sad.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5641318023172276054'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5641318023172276054'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/03/sad.html' title='sad'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-1866516865272748954</id><published>2010-02-25T05:08:00.000-08:00</published><updated>2010-02-25T05:11:39.074-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fight for Lyme Disease Education'/><category scheme='http://www.blogger.com/atom/ns#' term='diagnosis'/><category scheme='http://www.blogger.com/atom/ns#' term='mass lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='fatigue'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms disappearing'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='massachusetts lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='Lyme Kills'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms'/><category scheme='http://www.blogger.com/atom/ns#' term='lower back pain'/><title type='text'>Visit with my Lyme Specialist</title><content type='html'>Wed. Feb 24th, we drove to see our Lyme Specialist in CT.&lt;br /&gt;I was feeling much better and had in my mind that maybe, just maybe I would be getting of the meds. Not the case.&lt;br /&gt;Dr. Sabovic went over everything, what symptoms do I still have? The whole list.....even though I feel 80% better than when I was first diagnosed we have a while to go yet. A new round of antibiotics, oh no, Doxy, so I have to be extremely carefull in the sunshine!&lt;br /&gt;The symptoms that I still experience were lower back pain, hip pain, thigh aches and knee pain, upper back shoulder stiffness, pain, creepy crawly in my left shoulder, and a vibration in my right thigh. Although these symtoms are drastically reduced from when I first started treatment it still means Lyme is still there. I will be on some new supplements to help fight Lyme that may be encased in biofilm. If you read up on lyme you will understand. Antibiotics alone will not penetrate the biofilm so the supplements weaken the biofilm and allow the antibiotic to get inside.&lt;br /&gt;&lt;br /&gt;So looks like another 2 months on so on this medicine (as my job allows) since I work in the sun a lot at the Greenhouse. Then maybe 2 weeks on and 2 weeks off. We will test in 2 months for Lyme again and follow that up when all said and done for 2 years to make sure it is all gone.&lt;br /&gt;&lt;br /&gt;Though i am depressed that I still have awhile to go, I do feel much better.&lt;br /&gt;Its hard to complain when I see people who are so disabled by Lyme and struggle daily to fight this horrific disease.&lt;br /&gt;God bless you all. You are in my prayers.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-1866516865272748954?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/1866516865272748954/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/02/wed.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1866516865272748954'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1866516865272748954'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/02/wed.html' title='Visit with my Lyme Specialist'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-692994383627286609</id><published>2010-02-16T14:28:00.000-08:00</published><updated>2010-02-16T14:31:41.035-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fight for Lyme Disease Education'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='Change Legislation for Lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='Lyme Kills'/><category scheme='http://www.blogger.com/atom/ns#' term='Under Our Skin'/><title type='text'>Please take some time to research Lyme Disease Watch personal stories online and on youtube and SEE that this is REAL</title><content type='html'>As I continue to feel so much like my old self I can't help but think about so many of those whose lives are changed forever because of Lyme Disease. I am actually quite lucky!&lt;br /&gt;&lt;br /&gt;Like in the film "Under Our Skin" I have watched many home video's of people who have documented their children and other loved one's battle this horrid disease. Some get better, some still struggle daily to survive and others lose their lives. There are still people yet to be diagnosed and those of whom can not afford the high cost of treatment and are forced to slowly waste away until the end comes. This breaks my heart.&lt;br /&gt;&lt;br /&gt;The toughest part is knowing that Lyme does exist along with coinfections and yet Dr's in most states are not allowed to treat it aggressively, the fight for legilation for proper treatment (including testing) and new guidelines (especially here in Massachusetts) for correct treatment are taking too long. Most insurance companies don't cover treatment and for many that means death. &lt;br /&gt;&lt;br /&gt;We were lucky enough (if you can say that) to have some money set aside to get treatment from a Lyme Literate Dr out of state and be aggressively treated. That money is now gone and we have to use credit cards to get treatment. My husband should have had a direct PICC line of antibiotics because of his severe case but insurance would not pay. We could not afford $10,000 or more monthly for this treatment. Thankfully with an aggressive treatment plan(9 months so far)of daily medications and supplements his symptoms of not being able to speak and walk are gone. If he was never diagnosed he most likely would have ended up a vegetable in a wheelchair with a diagnoses of MS or Lou Gehrigs (which his primary care Dr did think it was).&lt;br /&gt;He was tested many times here in MA for Lyme and none of them showed up positive. Only when he got the Western Blot test from IGENEX in CA did it show up. This is why correct testing is so important. Why Dr's here in MA don't offer you the Western Blot test is beyond me. &lt;br /&gt;&lt;br /&gt;So this fight continues. A fight to get legilation passed, a fight to have insurance companies help pay for treatments and a fight to get this disease recognized as serious because it is more prevalent than AIDS here in the United States. &lt;br /&gt;&lt;br /&gt;LYME IS REAL AND IT KILLS, please take time and watch personal stories online. Learn how we can come together to defeat this.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-692994383627286609?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/692994383627286609/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/02/please-take-some-time-to-research-lyme.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/692994383627286609'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/692994383627286609'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/02/please-take-some-time-to-research-lyme.html' title='Please take some time to research Lyme Disease Watch personal stories online and on youtube and SEE that this is REAL'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-7549141821915096247</id><published>2010-01-18T14:04:00.000-08:00</published><updated>2010-01-18T14:04:55.037-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='feeling better'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><title type='text'>feeling better</title><content type='html'>Things are feeling mostly back to normal. I had a few days were I felt air hungry, some days with heart palapatations, forgetting things less but still here and there. I think that is one of the scariest things for me. When I truly forget something I did. Can't wait to be finished with all the meds. I still have some depression (working on it) but probably due to money stress. Things are getting much tighter with cash. Its nice to go to the specialist but I feel very strapped with my funds, not to mention I have a root canal going on and that is just more $$$. &lt;br /&gt;Jeff is feeling better also, he is also stressed but is trying very hard to focus on his new job. He is doing fantastic at it. Somedays are harder than others, he still gets ringing in the ears, especially when he drives a lot.&lt;br /&gt;We are both exercising a few times a week, trying to get back in shape for the summer. Can't wait to hit the beach, maybe surf, and Jeff can finally get some sun (he is off that medication)&lt;br /&gt;Till next time.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-7549141821915096247?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/7549141821915096247/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/01/feeling-better.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7549141821915096247'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7549141821915096247'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2010/01/feeling-better.html' title='feeling better'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-3032386364701516947</id><published>2009-12-07T19:14:00.000-08:00</published><updated>2009-12-07T19:14:37.251-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><title type='text'>LLMD appointment</title><content type='html'>My husband and I went to CT to see the LLMD. It was another follow up appt for my husband. He may finally be able to get the picc line IV medication that he desperately needs to attack the bacteria quicker. Hopefully our new insurance will approve. Sad when you have to be rich to get the treatment you really need. He is on differnt medication anyway, now he is eating dairy products and says he is feeling much better on these meds.&lt;br /&gt;&lt;br /&gt;Lyme is one hell of a disease. YES IT IS A DISEASE that is hardly recognized and some say it is not real, that it does not exist. That shocks me. Ticks can carry so many bacteria that can slowly kill you or quickly kill you. &lt;br /&gt;YES, IT CAN KILL YOU. &lt;br /&gt;&lt;br /&gt;I wish that our recovery is much quicker than it has been. It is a long, painful recovery. Painful because of the Herxheimer reaction. Killing the spirochites produces a toxin in the body which usually makes the treatment feel like it not working, sometimes creating a more painful cycle that is much worse than you ever experienced. I must say that even though the pain is great, knowing those little bastard spirochites are dying off makes me happy.&lt;br /&gt;Some day there will be a happy ending to all who have Lyme disease.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-3032386364701516947?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/3032386364701516947/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/12/llmd-appointment.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3032386364701516947'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3032386364701516947'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/12/llmd-appointment.html' title='LLMD appointment'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-6445028007072911654</id><published>2009-11-24T12:53:00.000-08:00</published><updated>2009-11-24T12:54:58.116-08:00</updated><title type='text'>Shame on Me</title><content type='html'>Last night I slept so good, hardly any pain, which was making me toss and turn the for quite a few nights, and I really felt rested and ready to go. I went off on my errand to Pompret, CT about 60 minute ride. On the way home I was getting more and more tired. I had planned on doing some more errands but by the time I arrived home I was exhausted and just looking forward to a nap. &lt;br /&gt;This is the disappointing part of LYME. &lt;br /&gt;You feel good one moment and then completely different hours later.&lt;br /&gt;I really shouldn't complain since my husband is sicker and he just keeps going regardless.&lt;br /&gt;shame on me&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-6445028007072911654?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/6445028007072911654/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/last-night-i-slept-so-good-hardly-any.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/6445028007072911654'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/6445028007072911654'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/last-night-i-slept-so-good-hardly-any.html' title='Shame on Me'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-5498570460626902681</id><published>2009-11-23T06:35:00.000-08:00</published><updated>2009-11-23T06:35:12.872-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='memory problems'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='slow'/><category scheme='http://www.blogger.com/atom/ns#' term='work issues'/><category scheme='http://www.blogger.com/atom/ns#' term='stupid'/><title type='text'>In the Middle of a Stupid Streak</title><content type='html'>Oh Boy, I am seriously in the middle of a stupid streak. Its hard to remember things, hard to find the words that I need to use, hard to spell simple words. What is even harder is at work they know I have Lyme but they don't understand the symptoms that come and go. I made quite a few mistakes Sat at work and was really embarrased about it. I jokingly said to my boss, its the Lyme disease, and she said yeah, sure, in a nice way of course. She is very sweet but so many people don't see you as sick cuz on the outside you look fine (most of the time) well, anyway I do. If I was falling down of slurring words they would understand better.&lt;br /&gt;I am hoping I am not going to eventually lose my job.&lt;br /&gt;I feel bad for my husband as his journey in recovery has been so much harder. He faces the same reactions in the people he meets and he is working his ass off for our family regardless. Hey I try to buy a winning lottery ticket but that just never happens. Oh Well, we all must go on, doing the best we can and dealing with life.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-5498570460626902681?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/5498570460626902681/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/in-middle-of-stupid-streak.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5498570460626902681'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5498570460626902681'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/in-middle-of-stupid-streak.html' title='In the Middle of a Stupid Streak'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-8413831423962268892</id><published>2009-11-20T06:25:00.000-08:00</published><updated>2009-11-20T06:25:40.799-08:00</updated><title type='text'>Just Joined a great support Group Online</title><content type='html'>This morning while I was surfing online I found this great site http://www.mdjunction.com/ A wonderful place to connect with others when you need support for an illness. &lt;br /&gt;&lt;br /&gt;After my husband was FINALLY diagnosed with CHRONIC LYME Disease in June 09, he and I just want to help others with it. &lt;br /&gt;I feel that his blog can help so many who are experiencing the same thing.&lt;br /&gt;&lt;br /&gt;My blog was first created for me to keep a bit of a journal and if it helps others thats fantastic.&lt;br /&gt;&lt;br /&gt;For anyone that wants to talk, not a problem! We are both here for you, to help in anyway we can.&lt;br /&gt;Take care everyone, there is a light at the end of the tunnel. A good light!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-8413831423962268892?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/8413831423962268892/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/just-joined-great-support-group-online.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/8413831423962268892'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/8413831423962268892'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/just-joined-great-support-group-online.html' title='Just Joined a great support Group Online'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-7591479483873870336</id><published>2009-11-09T17:11:00.000-08:00</published><updated>2009-11-09T17:11:26.025-08:00</updated><title type='text'>Physical with my Primary.</title><content type='html'>Saw my primary today. Had a physical. This is the first time she heard I had Lyme Disease. I didn't send her any info from my Lyme specialist mostly because it seems Dr's around here just dont' get it, still!&lt;br /&gt;She was surprised and asked me about the meds I am on. While punching all this info into the computer, she asked me questions about symptoms. All and all not seeming too interested in what I had to say. You know, I was there for a physical and she only had 5 minutes to see me.&lt;br /&gt;Boy, I am so spoiled from my Lyme specialist. After all he acutally sits and listens to what I have to say, really listens. I think its time to find a new primary. Am I alone in this? Will I find a primary that will take the time needed to talk to me? &lt;br /&gt;Just venting a bit.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-7591479483873870336?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/7591479483873870336/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/physical-with-my-primary.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7591479483873870336'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7591479483873870336'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/11/physical-with-my-primary.html' title='Physical with my Primary.'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-1595616071664922043</id><published>2009-10-18T18:41:00.000-07:00</published><updated>2009-10-18T18:43:44.679-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='lyme sickness'/><category scheme='http://www.blogger.com/atom/ns#' term='tired'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='what is wrong with me?'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms'/><category scheme='http://www.blogger.com/atom/ns#' term='lower back pain'/><title type='text'>Are You Not Feeling Well?</title><content type='html'>Not feeling well? &lt;br /&gt;Dr's can't find what is wrong?&lt;br /&gt;&lt;br /&gt;If you seem to have health problems that no one can pinpoint to a certain cause you should check out the list of symptoms for Lyme Disease. It is amazing how many symptoms there are and what Dr's many times actually diagnose instead of Lyme. Please check this list  at:http://www.canlyme.com/patsymptoms.html&lt;br /&gt;&lt;br /&gt;It doesn't hurt to get the Western Blot test for Lyme but definately have the Dr send it to the best lab in the country in California. Usually it is an out of pocket cost for this but it is very worth it!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-1595616071664922043?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/1595616071664922043/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/10/not-feeling-well-drs-cant-find-what-is.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1595616071664922043'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1595616071664922043'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/10/not-feeling-well-drs-cant-find-what-is.html' title='Are You Not Feeling Well?'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-5484650841337925395</id><published>2009-10-12T17:26:00.000-07:00</published><updated>2009-10-12T17:26:27.293-07:00</updated><title type='text'>ANOTHER DAY, DEJA VUE</title><content type='html'>Sometimes it feels as if I'm saying the same things over and over again, sounding like a broken record. &lt;br /&gt;&lt;br /&gt;I have emerged from a month long cycle that was very difficult. &lt;br /&gt;Dealing with waves of extreme fatigue, lower back pain making sleeping difficult, TMJ, and other aches and pains.&lt;br /&gt;Within the last week I have felt much better again, with renewed energy, less back pain and no TMJ. &lt;br /&gt;What I do notice is the pain that comes after doing some very normal chores.&lt;br /&gt;For instance,I got up Sunday morning a bit tired since I was a vendor at a craft fair on Saturday. The task of loading up my car, unloading and setting up, standing all day, breaking down the displays and repacking the car was quite a lot.&lt;br /&gt;After breakfast at about 9:30 I decided to unload the car from the previous day. After my husband and I unloaded the car, we cleaned out the barn which desperately needed it and filled up the dumpster. Then we decided to clean the gutters. Jeff placed the ladder with little help from me and I climbed up and down cleaning them out. The front of the house being two stories and the back 3 stories. Then I cleaned the house before company arrived, unloaded groceries from the car when Jeff returned, helped clean up while Jeff was cooking and then relaxed with our guests.&lt;br /&gt;I had the energy to do all those things and wasn't complaining about anything but after sitting for awhile and then standing my body hurt. Not just my back which would normally be where I would have pain but my entire body. My feet hurt and I couldn't believe it. My hands, neck, and my lower back, it felt like I had been hit by a truck. AAAAHHHHH! HOW I HATE THAT.&lt;br /&gt;&lt;br /&gt;I know I have talked about this before but living with constant lower back pain for so long then having the majority of it go away when I started treatment was a true gift of life. ENJOYMENT!!! I was able to NOT think about the pain (which was every minute of every day previously). &lt;br /&gt;So feeling the constant pain again with my back is very disheartening.&lt;br /&gt;I hate for that to come back, I don't want to feel 80 years old, I don't want all my muscles to ache. I HATE THE FEELING THAT EVERYTIME I DO SOMETHING STRENUOUS MY BODY REACTS IN SO MUCH PAIN AFTERWARDS!!!&lt;br /&gt;&lt;br /&gt;I had to work today and I made several floral designs to go out and worked the entire day without many problems. Now my knees are the part of my body that hurts.&lt;br /&gt;&lt;br /&gt;THIS IS LYME DISEASE. IT DOES WHAT IT WANTS EVEN WHEN WE ARE FIGHTING IT!&lt;br /&gt;The best part is we can fight it, when the cycle ends and you feel better, you forget how sick you are. Knowing that someday soon this will all go away (as long as I am good about not getting bit again)&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-5484650841337925395?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/5484650841337925395/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/10/another-day-deja-vue.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5484650841337925395'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5484650841337925395'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/10/another-day-deja-vue.html' title='ANOTHER DAY, DEJA VUE'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-2614650245116255073</id><published>2009-09-22T16:35:00.000-07:00</published><updated>2009-09-22T16:56:43.103-07:00</updated><title type='text'>2 month update with Dr. Sabovic</title><content type='html'>I had my 2 month talk with the specialist, Dr. Sabovic, the other day. &lt;br /&gt;We went over how I was feeling, what had improved, how much of an improvement it was and the symptoms that are still with me.&lt;br /&gt;&lt;br /&gt;We also talked about the medication and how it was working for me. Sometime I still get stomach upset but nothing serious.&lt;br /&gt;&lt;br /&gt;I discussed what had improved since I started the meds and that it was about a &lt;br /&gt;60-70% improvement from what I felt like before. I still get that creepy crawly feeling in my shoulder, neck and upper back stiffness, weakness in my wrists and knees and tired but not exhausted. My memory has improved as well as my concentration and my spelling is improving (although I still have a day here and there that spelling can be difficult) &lt;br /&gt;&lt;br /&gt;If these symptoms do not improve we will change the medication.&lt;br /&gt;&lt;br /&gt;He also said that I tested positive for Babesia, which is another bacteria that the tick carries. It usually goes hand in hand with Lyme. The normal number is 14/15 and I tested 16. So it was just over the norm. He asked me if I had any night sweats or felt a chill right to my bones. I have had some night sweats but so infrequent that it is not a concern.&lt;br /&gt;&lt;br /&gt;He also asked if I had air hunger. I had to repeat that one back to him, AIR HUNGER?&lt;br /&gt;did you just say air hunger?&lt;br /&gt;Yes he did, it is when you feel like you just can't get enough air and breath in deeply. Not like an asthma attack but just a need to get extra air.&lt;br /&gt;I have had that on occassion also but not to the point where I thought it was an issue.&lt;br /&gt;&lt;br /&gt;The medication I am on should be good for the Babesia and I will monitor my progress closely over the next few weeks. If there is no improvement in my energy (which is my biggest concern now) I will contact him.&lt;br /&gt;&lt;br /&gt;I am also going to get lab work to make sure the med's are not harming my liver.&lt;br /&gt;&lt;br /&gt;So things are getting better all the time and I have been very busy with my artwork for this Saturdays Fine Arts and Craft show in Lexington.  Onward and upward we go, one day at a time.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-2614650245116255073?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/2614650245116255073/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/09/2-month-update-with-dr-sabovic.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2614650245116255073'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2614650245116255073'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/09/2-month-update-with-dr-sabovic.html' title='2 month update with Dr. Sabovic'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-5279709490034245267</id><published>2009-08-27T16:54:00.000-07:00</published><updated>2009-08-27T17:13:40.123-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms'/><title type='text'>Surfing Anyone?</title><content type='html'>WE HAD GONE AWAY ON A SHORT VACATION, PLAYED IN THE SWELLS FROM HURRICANE BILL UP IN MAINE (ON THE BOOGIE BOARDS) NOT QUITE UP TO SURFING YET.&lt;br /&gt;Jeff had a tough time after about 30 min. hard for him to walk, sometimes he tries too hard to do the things he used to do so easily. He will get there, it just takes time. We still continue to laugh about things.&lt;br /&gt;I continue to improve. Soon I will have a conversation with our specialist about the next session of medications. I am curious as to what he will say. So many of the symptoms have come and gone. At this moment, what I am experiencing are, creepy crawly sensations in my right shoulder, achy and stiff neck/shoulders, some stiffness when I get up from a chair but for now this is good.&lt;br /&gt;I actually stood for 3 hours during the Bruce Springsteen concert in Mansfield.&lt;br /&gt;Although my ankles and knees were really sore it was worth it.&lt;br /&gt;We both continue to try to help others. For now the news about Lyme disease continues &lt;strong&gt;NOT&lt;/strong&gt; to be a story on the front page of Massachusetts newspapers but hopefully, very soon, the laws will be changing so Dr's will be able to aggressively treat Lyme, educate themselves (because most of them haven't due to the recent laws) and truly be able to prescribe the most effective treatment without getting in trouble. Amazing how this disease is so widespread, yet, so ignored as a problem. That is until someone of importance comes down with it!!&lt;br /&gt;Till next time!&lt;br /&gt;P.S. I have started to paint again, feels great, nice to have inspirations and feel good enough to use them. This time I chose a 12" x 12" canvas. Usually I have only felt good enough to paint ACEO'S.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-5279709490034245267?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/5279709490034245267/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/we-had-gone-away-on-short-vacation.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5279709490034245267'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/5279709490034245267'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/we-had-gone-away-on-short-vacation.html' title='Surfing Anyone?'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-9094976991051818027</id><published>2009-08-18T10:43:00.000-07:00</published><updated>2009-08-18T10:48:32.467-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='happiness'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms disappearing'/><category scheme='http://www.blogger.com/atom/ns#' term='feeling good'/><title type='text'>Feeling Better Again Round 2</title><content type='html'>Thats what it feels like, rounds in a boxing match. One minute your up, the next your down, not in such a short time of course but you can get what I mean.&lt;br /&gt;&lt;br /&gt;I am feeling so much better, More energy, no depression, minimal pain. I actually went kayaking for about 2 hours yesterday, up river and then down. Was awesome, haven't done that in quite sometime. Now if I could only feel up to rock climbing I would be there. Maybe next spring!!&lt;br /&gt;&lt;br /&gt;So things are looking up again. I am able to type better, think better and even spell better today. Its just good to feel like you can tackle anything.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-9094976991051818027?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/9094976991051818027/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/feeling-better-again-round-2.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/9094976991051818027'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/9094976991051818027'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/feeling-better-again-round-2.html' title='Feeling Better Again Round 2'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-3601895765370219812</id><published>2009-08-13T08:01:00.000-07:00</published><updated>2009-08-13T08:15:45.252-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='short term memroy problems'/><category scheme='http://www.blogger.com/atom/ns#' term='tick related diseases'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><title type='text'>Struggling with Setbacks (typical Lyme)</title><content type='html'>Sometimes you just feel like giving up. I know I can not, but some days when the symptoms come back you just feel like it.&lt;br /&gt;&lt;br /&gt;Though not as severe most symptoms have returned and I continue with my daily swallowing of pills. Memory issues, saying what I want, misspelling words, minor pain, depression and tiredness have returned. &lt;br /&gt;The depression I have stuggled with before but always have gotten through it.&lt;br /&gt;I am normally a happy go lucky person, focusing on my artwork and creativity to get me through tough times. I am not quite sure the depression is related to Lyme but I will, as well as my husband, keep an eye on it.&lt;br /&gt;&lt;br /&gt;When the symptoms do come back, which is expected because the treatment is killing them off, you feel like you will never feel good, pain free again. My husband as well as his sister are going through the same feelings, Jeff knows he can't give up, he coaches his sister, myself and others to keep going. &lt;br /&gt;&lt;br /&gt;There is always something worse that can go wrong. I should be glad I am not dealing with cancer as so many of my loved ones are or have been.&lt;br /&gt;&lt;br /&gt;At least I know that somewhere down the line that tiny shimmer of light will become more visable and within reach. &lt;br /&gt;For those of you who feel the same, keep on going, talk it out, write it down, do whatever you can to keep the faith and smile alot.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-3601895765370219812?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/3601895765370219812/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/struggling-with-setbacks-typical-lyme.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3601895765370219812'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/3601895765370219812'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/struggling-with-setbacks-typical-lyme.html' title='Struggling with Setbacks (typical Lyme)'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-6182317121463187754</id><published>2009-08-05T06:25:00.000-07:00</published><updated>2009-08-05T06:36:10.810-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='tired'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='ticks'/><category scheme='http://www.blogger.com/atom/ns#' term='aches and pains'/><category scheme='http://www.blogger.com/atom/ns#' term='fatigue'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><title type='text'>The Return of Pain</title><content type='html'>It has been 4 weeks since I've been on my med's and the pain has come back. Although not as bad in the lower back, ankles and wrists, but in my knees, thighs, hips and buttock. I have hiked and swam even though the pain is there (like I always did when I didn't know I had Lyme). I know that it will subside again but it freaks me out a bit to think that these things are dying off inside my body. How gross!! I have been very tired again and yes you begin to think that the pain will return and never go away. I have to keep taking the med's even though I absolutely hate swallowing pills.&lt;br /&gt;I cringe everytime I have to. I am waiting right now to take my morning ones.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;I am so happy to see many people have read my husbands blog. He is truly helping others and that is very important to him. He has been having some of the pain return also but I made him come to the beach the other night thinking he would like to try a swim again. (He had been very nervous about getting back in the water and swimming) He loves to swim and the thought of not being able to or having pain and going under was terrifying. He did extremely well as I watched him go back and forth along the bouys. &lt;br /&gt;Then he played catch with Trevor in the water.&lt;br /&gt;&lt;br /&gt;I know that this is a journey that has many hills and valleys but I am happy to know that we continue to travel along it regardless of the deep valleys and the steep hills.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-6182317121463187754?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/6182317121463187754/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/return-of-pain.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/6182317121463187754'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/6182317121463187754'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/08/return-of-pain.html' title='The Return of Pain'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-2111970745799827121</id><published>2009-07-18T04:41:00.001-07:00</published><updated>2009-07-18T04:41:39.806-07:00</updated><title type='text'>NEWER POSTS APPEAR FIRST, SCROLL DOWN TO SEE BEGINNING</title><content type='html'>&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-2111970745799827121?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/2111970745799827121/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/newer-posts-appear-first-scroll-down-to.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2111970745799827121'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2111970745799827121'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/newer-posts-appear-first-scroll-down-to.html' title='NEWER POSTS APPEAR FIRST, SCROLL DOWN TO SEE BEGINNING'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-7025799090264455759</id><published>2009-07-17T06:19:00.000-07:00</published><updated>2009-07-17T06:23:38.681-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='lyme sickness'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='ticks'/><category scheme='http://www.blogger.com/atom/ns#' term='aches and pains'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='lower back pain'/><title type='text'>UPDATE</title><content type='html'>IT HAS BEEN ALMOST 10 DAYS SINCE I STARTED THE MEDICATION. I TRULY CAN'T BELIEVE THE DIFFERENCE. THE CHRONIC BACK PAIN THAT I EXPERIENCED FOR 4 YEARS IS GONE. TO BE PAIN FREE IS AMAZING. NO MORE ACHES IN MY OTHER JOINTS THAT LAST ALL DAY OR ALMOST EVERY DAY. I FEEL LIKE A NEW PERSON. &lt;br /&gt;&lt;br /&gt;MY TMJ HAS DISAPPEARED. &lt;br /&gt;&lt;br /&gt;THERE ARE DAYS WERE I FEEL TIRED BUT NOT THE KIND OF TIRED I USED TO GET.&lt;br /&gt;&lt;br /&gt;SO THINGS ARE LOOKING GREAT!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-7025799090264455759?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/7025799090264455759/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/update.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7025799090264455759'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/7025799090264455759'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/update.html' title='UPDATE'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-1610172523681292598</id><published>2009-07-09T10:46:00.000-07:00</published><updated>2009-07-09T11:09:56.324-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='short term memroy problems'/><category scheme='http://www.blogger.com/atom/ns#' term='tick related diseases'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='chronic lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme symptoms'/><title type='text'>MY SYMPTOMS</title><content type='html'>Since a few years back I had steadily become more achy in the knees, wrists, ankles and lower back. I truly thought that it was age related. Maybe some of it is. My thighs would also ache. Until this past year I noticed other symptoms but as I said before that they were mild and sporadic. These are some of the most recent:&lt;br /&gt;&lt;br /&gt;increased motion sickness&lt;br /&gt;&lt;br /&gt;short term memory problems&lt;br /&gt;&lt;br /&gt;stabbing pains that last only seconds in various places such as, ankles, thigh, side, head, wrist, hand&lt;br /&gt;&lt;br /&gt;my eyes went blurry one day while talking to a customer at work, both were blurry and then the right eye vision started to shake &lt;br /&gt;&lt;br /&gt;extreme fatigue on occasion, tired most of the time&lt;br /&gt;&lt;br /&gt;hard to concentrate&lt;br /&gt;&lt;br /&gt;heart skipping beats, or beating funny for a few seconds&lt;br /&gt;&lt;br /&gt;a slight buzzing in one ear&lt;br /&gt;&lt;br /&gt;weakness in the knees and wrists&lt;br /&gt;&lt;br /&gt;droopy eyelid&lt;br /&gt;&lt;br /&gt;nausea&lt;br /&gt;&lt;br /&gt;and I have notice over the last year and a half that spelling easy words was very hard&lt;br /&gt;&lt;br /&gt;The most recent symptom was ear pain when I was chewing, now it has moved to the jaw, TMJ&lt;br /&gt;&lt;br /&gt;I have started on the medications and supplements (one night and two days now) and noticed a change the next day. I wasn't achy at all, felt wide awake a ready to go. Even my eyes felt wide open. I ended up with nausea and diarrhia for the first couple of days but it is settling down. The Dr. said usually the symptoms get worse before they get better so we shall see. I know that my husband felt good the next day when starting his meds and then got worse for a few weeks. &lt;br /&gt;&lt;br /&gt;Today I don't have as much energy and it is difficult to type and spell correctly.&lt;br /&gt;&lt;br /&gt;I have worked in my garden planting flowers and weeding today, took my son out and now I am home writing this but plan on relaxing on the couch for a bit. &lt;br /&gt;&lt;br /&gt;Feeling like a new person yesterday was amazing and I can't wait to feel that way forever.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-1610172523681292598?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/1610172523681292598/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/my-symptoms.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1610172523681292598'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/1610172523681292598'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/my-symptoms.html' title='MY SYMPTOMS'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-7257250658073394787.post-2541073146995731401</id><published>2009-07-08T09:21:00.000-07:00</published><updated>2009-07-08T09:52:11.021-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='diagnosis'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme disease'/><category scheme='http://www.blogger.com/atom/ns#' term='lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='what is lyme'/><category scheme='http://www.blogger.com/atom/ns#' term='sick'/><title type='text'>HOW I FOUND OUT I HAD LYME DISEASE</title><content type='html'>My husband has been recently diagnosed with &lt;strong&gt;chronic Lyme disease&lt;/strong&gt; after many years of suffering, Dr visits, thinking he was crazy and having mutiple tests done. Lyme and others came up negative, not once but a few times. SEE HIS STORY AT http://www.jeffslymejournal.blogspot.com. &lt;br /&gt;&lt;br /&gt;We found a specialist, a "LYME" specialtist and drove 2 1/2 hours to see him.&lt;br /&gt;&lt;br /&gt;After my husbands hour and a half visit, tests etc.... he suggested that I get the Western Blot test also to see if I have Lyme because we were here at the specialist and WHY NOT? So I got the test also. Weeks later we received the news.&lt;br /&gt;&lt;br /&gt;My husband tested positive for Lyme and I so did I! &lt;br /&gt;&lt;br /&gt;Wow! We were happy,(as you could be for that matter), that &lt;strong&gt;finally&lt;/strong&gt; the tests showed up positive and treatment was prescibed for my husband but I was shocked that I tested positive for active Lyme!&lt;br /&gt;&lt;br /&gt;I had very mild symptoms and never in a million years thought that I had LYME! I just thought that I was getting older, achy joints were normal and just ignored the other mild symptoms because they were so few and far between. &lt;br /&gt;&lt;br /&gt;NEITHER ONE OF US SHOWED THE CLASSIC BULLSEYE RASH THAT MANY PEOPLE GET! &lt;br /&gt;&lt;br /&gt;So now treatment begins for me. My husband has been on the med's for a month now with very much improved results!!! I just started and it feels strange because I was never on many medications all at once. But I am glad that we caught it early. Lyme is a terrifying disease. So many people have so many different things happen to their bodies. "UNDER OUR SKIN" is a documentary on Lyme disease and it is very eye-opening and shocking to see but a must, I believe, for everyone!!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/7257250658073394787-2541073146995731401?l=diagnosedwithlymedisease.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://diagnosedwithlymedisease.blogspot.com/feeds/2541073146995731401/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/how-i-found-out-i-had-lyme-disease.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2541073146995731401'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/7257250658073394787/posts/default/2541073146995731401'/><link rel='alternate' type='text/html' href='http://diagnosedwithlymedisease.blogspot.com/2009/07/how-i-found-out-i-had-lyme-disease.html' title='HOW I FOUND OUT I HAD LYME DISEASE'/><author><name>barbara hickson</name><uri>http://www.blogger.com/profile/09597897862949292272</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_Fv08g2dSfv0/SZNPAyGH18I/AAAAAAAAAX8/6SHG5spFBVI/S220/mishka.JPG'/></author><thr:total>0</thr:total></entry></feed>
